Realtor Denise Chapline‘s beautiful grandson Ethan was born with a rare genetic disease called Hunter Syndrome.
Doctors at Nationwide Children’s Hospital in Columbus, Ohio have conducted research that leads them to believe that a cure for Hunter Syndrome (MPS II) has been discovered. Doctors there have conducted years of research and are relying on parent-led organizations to raise the $750,000 needed to carry the drug development process through clinical trials. Human clinical trials involve administering the drug in a controlled environment to gather data on efficacy. This is usually done before making the drug available to all affected patients.
If all deadlines are met, Dr. Fu and Dr. McCarty hope to start clinical trials by end of Summer 2018.
Sock-it 2 Hunter Syndrome is a foundation dedicated to fundraising for research and development towards finding a cure for MPSII, aiming to not only find a cure for Hunter Syndrome, but to fund research for improved treatment options.
For more information, visit:
http://sockit2huntersyndrome.org/
and
